One of my favorite podcasts did a transplant episode. The Podcast is Sawbones: A Marital Tour of Misguided Medicine, and they normally focus on weird medical history. I sent them a e-mail awhile back about transplants hoping they would one day do a podcast on the topic. Turns out I should have put more back story in my e-mail then just suggest transplants because another listener who is going to donate his kidney, told them he was going to donate and that he wanted them to do a episode on transplants and they did!!! So needless to say I was excited about the episode! I am going to link the episode below for people to listen to. I would also recommend you check out their other episodes as well if you like learning about weird medical things. TRANSPLANT EPISODE! SAWBONES!
Wednesday, December 17, 2014
Tuesday, December 16, 2014
6month Blood work
Was sent the form to take to Labcorp to do my 6month blood work. Kidney is still working well and I am feeling good. I guess we will see how my body is doing when the results come back. I'm assuming everything is normal since I feel fine. I will update again when I have the results.
On another note Dave and I planned a 1 year kidneyaversery cruise. Its about a month before the one year mark because that was cheaper but it will be our little celebration. It will also make up for the trip Dave missed when we originally found out his kidneys had failed. Hopefully he will be able to go on this one (we did buy trip insurance just in case, learned our lesson). We will be going to Cozumel, Montego Bay, and Belize. Should be a blast!
That is all for now. I just like to post mini updates to let you know we are doing well. :D
On another note Dave and I planned a 1 year kidneyaversery cruise. Its about a month before the one year mark because that was cheaper but it will be our little celebration. It will also make up for the trip Dave missed when we originally found out his kidneys had failed. Hopefully he will be able to go on this one (we did buy trip insurance just in case, learned our lesson). We will be going to Cozumel, Montego Bay, and Belize. Should be a blast!
That is all for now. I just like to post mini updates to let you know we are doing well. :D
Tuesday, December 2, 2014
#givingtuesday
It is Giving Tuesday and that means I want to talk to you about the Cupids Undie run. I know this is not Kidney related and I should really post an update about that soon (blood work in the next week or so to make sure everything is still good, as soon as I have that information I will share.).
The Cupid's Undie run is a run to help end Neurofibromatosis, a disorder that causes tumors to grow in and disrupts cell growth in ones nervous system. It can be very painful. The run is done in February in the freezing cold (at least in our location, it was snowing last year), and in ones underwear. The reason for this is to show that we are willing to do anything to help find a cure including run in freezing temperatures, through a city, in our underwear.
I am raising donations for the Children's Tumor foundation to help find a cure for this painful disorder. http://my.cupids.org/AmberWoo These donations go to help people like Meg Rowe Baltimores NF Hero! She has Neurofibromatosis and it has turned into a form of cancer she is fighting. She did the run last year and I can not wait to run with her this year as well as raise as much money for her and others who are battling with her. For more on meg check out her page http://www.caringbridge.org/visit/megrowe.
So if you are looking for a place to give some extra money to this holiday season, check out my page and help find a cure for NF. Feel free to also give to organizations who deal with transplants too, if not The Children's Tumor Foundation
The Cupid's Undie run is a run to help end Neurofibromatosis, a disorder that causes tumors to grow in and disrupts cell growth in ones nervous system. It can be very painful. The run is done in February in the freezing cold (at least in our location, it was snowing last year), and in ones underwear. The reason for this is to show that we are willing to do anything to help find a cure including run in freezing temperatures, through a city, in our underwear.
I am raising donations for the Children's Tumor foundation to help find a cure for this painful disorder. http://my.cupids.org/AmberWoo These donations go to help people like Meg Rowe Baltimores NF Hero! She has Neurofibromatosis and it has turned into a form of cancer she is fighting. She did the run last year and I can not wait to run with her this year as well as raise as much money for her and others who are battling with her. For more on meg check out her page http://www.caringbridge.org/visit/megrowe.
So if you are looking for a place to give some extra money to this holiday season, check out my page and help find a cure for NF. Feel free to also give to organizations who deal with transplants too, if not The Children's Tumor Foundation
Wednesday, October 8, 2014
Nothing that new.
Its been awhile now since my last blog post and since the surgery. Dave and I are both doing well. Our schedule has been a little over packed lately, possibly because we are making up for all the things we couldn't do a year ago, due to him being on Dialysis.
I still get dehydrated faster and keep trying to drink lots of water, but I do forget sometimes. I also on occasion get a slight pain where my kidney used to be. I am assuming this is still from scar tissue around my muscles and over use of that area at times. There is also still hardly any sign I had a surgery, people are amazed at the incision site being my belly button and looking so nicely healed. I haven't forgotten about before and after pics, I have just been busy as mentioned above. I am going to try and challenge myself to do it by the end of this week, so if you are interested keep an eye out.
Onto other fun things, Dave and I brought home a puppy, something we definitely did not have time for when he was on dialysis. She is a Brittany and we have named her Echo. She has a lot of energy and is keeping us both active which is great for the both of us.
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I still get dehydrated faster and keep trying to drink lots of water, but I do forget sometimes. I also on occasion get a slight pain where my kidney used to be. I am assuming this is still from scar tissue around my muscles and over use of that area at times. There is also still hardly any sign I had a surgery, people are amazed at the incision site being my belly button and looking so nicely healed. I haven't forgotten about before and after pics, I have just been busy as mentioned above. I am going to try and challenge myself to do it by the end of this week, so if you are interested keep an eye out.
Onto other fun things, Dave and I brought home a puppy, something we definitely did not have time for when he was on dialysis. She is a Brittany and we have named her Echo. She has a lot of energy and is keeping us both active which is great for the both of us.
Lastly, last year I ran In the Cupid's Undie Run and am planning on doing so again this year. The run takes place on Valentine's Day and is a mile run around Baltimore City in my Underwear. The run raises money for The Children's Tumor Foundation to help end neurofirbomatosis(NF). NF is a genetic disorder that causes tumors to grow on various nerves. This disorder can cause lots of difficulties for people who have it. Knowing how bad tumors (B-9 or not) can effect the human body and having personally been effected by someone who has had a different type of genetic tumor causing disorder I feel like this is a great cause to support. This is why I am passionate about raising money this year to help find a cure for NF. By running this race I committed to help raise money for the cause. If you are interested in helping me do that you can donate to my page http://my.cupids.org/AmberWoo . All donations go to The Children's Tumor Foundation.
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| My Team from Last years Run. |
Monday, July 7, 2014
Update
It has been almost 2 weeks since I met with my surgeon about the pain I was having. Luckily the pain is gone and I am getting back to normal again.
Dave and I had a chance to spend 4th of July at Ocean City, MD. Its great being able to have him go in pools and things again since he no longer has the dialysis catheter. We took full advantage of this and spent a day at the water park!
On another note, you can hardly tell I had a surgery at all. Very little scaring! One day I will post some before and after pics so you can see how minimal it is.
Lastly, a ECU tech at my job just had a stroke at the age of 28. I know it isn't kidney transplant related but that is the same age Dave was when he was diagnosed with ESRD, and I know how hard having something major happen to someone so young can be. So I just wanted to share her fundraising page, to maybe help give her and her family some more support during this time. So if you want to know more feel free to click here.
Okay, that is all, I'll try and put up some before and after pics soon!
Dave and I had a chance to spend 4th of July at Ocean City, MD. Its great being able to have him go in pools and things again since he no longer has the dialysis catheter. We took full advantage of this and spent a day at the water park!
On another note, you can hardly tell I had a surgery at all. Very little scaring! One day I will post some before and after pics so you can see how minimal it is.
Lastly, a ECU tech at my job just had a stroke at the age of 28. I know it isn't kidney transplant related but that is the same age Dave was when he was diagnosed with ESRD, and I know how hard having something major happen to someone so young can be. So I just wanted to share her fundraising page, to maybe help give her and her family some more support during this time. So if you want to know more feel free to click here.
Okay, that is all, I'll try and put up some before and after pics soon!
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