Showing posts with label neurofibromatosis. Show all posts
Showing posts with label neurofibromatosis. Show all posts

Tuesday, December 2, 2014

#givingtuesday

It is Giving Tuesday and that means I want to talk to you about the Cupids Undie run.  I know this is not Kidney related and I should really post an update about that soon (blood work in the next week or so to make sure everything is still good, as soon as I have that information I will share.).

The Cupid's Undie run is a run to help end Neurofibromatosis, a disorder that causes tumors to grow in and disrupts cell growth in ones nervous system.  It can be very painful.  The run is done in February in the freezing cold (at least in our location, it was snowing last year), and in ones underwear.  The reason for this is to show that we are willing to do anything to help find a cure including run in freezing temperatures, through a city, in our underwear.

I am raising donations for the Children's Tumor foundation to help find a cure for this painful disorder.  http://my.cupids.org/AmberWoo These donations go to help people like Meg Rowe Baltimores NF Hero!  She has Neurofibromatosis and it has turned into a form of cancer she is fighting.  She did the run last year and I can not wait to run with her this year as well as raise as much money for her and others who are battling with her.  For more on meg check out her page http://www.caringbridge.org/visit/megrowe.

So if you are looking for a place to give some extra money to this holiday season, check out my page and help find a cure for NF.  Feel free to also give to organizations who deal with transplants too, if not The Children's Tumor Foundation


Thursday, February 6, 2014

mini, mini update.

Tuesday I had to go to my personal Dr. for one last thing (that should turn out fine which is why no one is worried about it halting the process) and my blood pressure was normal!  This is really exciting for me since I knew all along my blood pressure was normal but it kept being high for things! First step to beating my bad white coat syndrome!

Also looks like March 6th or March 7th depending of if they decide to remove Dave's kidneys or not (he has a CT scan on the 10th for them to evaluate the need to remove them or not).  Soon but soon is exciting.

Also decided to just relax and not think about the money I have all my tax stuff so hopefully if I get them done soon I'll get some money back to help with it all (I know I've payed plenty of Student Loan Interest to be eligible).


Unrelated I am running (in my underwear) for the Cupids Undie run on Febuary 15th to help end neurofibromatosis and raise money for the Children's Tumor Foundation.  If you would like to support me; I am going to link my page below, all money donated goes straight to the Children's Tumor Foundation!
To donate: http://hopecur.com/amberwoo
Thanks