Tuesday, May 13, 2014

all the calls

Today everyone is calling to confirm details and see if I have any questions.

First was the social worker.  She called to make sure I wasn't being pressured to do this.  She also wanted to make sure I wasn't receiving any money or things like a diamond ring.  (I rolled my eyes at that one)  She also wanted to go over the risks again and let me know this isn't a cure just a treatment and it could reject.  All things I know about.  She also said my room at the hospital would have snacks, drinks, a TV and a computers, donors get the upscale rooms.  She also wanted to make sure my family was doing okay and know the people I would be around after surgery.  I told her we lived with another couple and when she asked for their names I said "Kristin and f.... Bryon."  It would have been interesting explaining Fi's name to the social worker. (for those that read this and don't know my housemates name is Bryon but we call him Fi which is his nickname from high school that stands for fucking idiot) I should see her again on Friday after the surgery but she will be seeing my mom at least on Thursday while she waits for me to get out of surgery.

Then my coordinator (well 2nd coordinator my first one is out on maternity leave, which is funny because so is Dave's original coordinator) called to just go over what I should do tomorrow.  Eat a normal breakfast and lunch and a light dinner. Nothing after midnight.  Work is doing a breakfast thing tomorrow so I will just eat a bigger breakfast then usual and a smaller lunch and I think it should all work out.  The Coordinator told me to be there at 6am on Thursday ready to go.

Its so soon now!  I am going to try and get pictures though out the day and maybe one of my kidney.  I'll put my mom in charge of these things mostly because I will be out of it.  I think pictures will be a more exciting way to share my experience here.

So yeah, I'm excited to get this over with, one more day then Transplant Day!

Monday, May 12, 2014

Preop appointment and more.

Its almost here and things seem to still be on track!  Friday I went in for my preop appointment.  Met with my surgeon Dr. Lamattina.  Didn't really go over anything new.  My mom and I both like him and feel good about him performing the surgery.  Should still be the single port surgery (click for video of surgery)  and he said he has never had to convert it to an open nefrectomy. He has had to add a second port before, but I think that is on very rare occasions.  After meeting with him quickly I went over to the prepcenter where I had to wait 15 min.  (mind you they called me 3 times to make sure I would be there on time and then made me wait when I was there on time).  They took blood samples, urine samples, checked my airways, and asked a ton of questions most of which the answer was no.  It was quick enough and easy.  They also gave me this bracelet to wear until Thursday...
I did the Warrior Dash Saturday and cut it off beforehand so I didn't destroy it.  There has to be a better way to keep track of people then making them wear a bracelet for a week.  Dave cut his off before his kidneys were removed so I think it will be fine.  Plus I think the mud would have destroyed it.  I'll just take it with me on Thursday morning.
(Me all the way on the right and my Warrior Dash Group!)

Dave has to have some blood work drawn today and go to an information session about post surgery.  I think he is learning how to take his drugs and stuff.  I'll learn more about it all tonight.  The blood work they do today will make sure our blood still mixes well which hopefully it will since he has had 2 blood transfusions since the initial cross match.  

Now we are currently just trying to get the house cleaned up.  I want the bedroom clean encase people come upstairs to see us, all the laundry to be done, and other little things.  I'm working every day until the surgery so I feel like it will be here super quick. I think working right up to it will help keep my anxiety away and I think Wed. night I should go do some yoga.  I feel ready and calm about it all still and am glad I am able to donate.  It is weird though to think that by the end of this week Dave will have a part of my body inside of him.  

I also think that we should name the Kidney, probably something gender neutral.  If you have any suggestions post them in the comments for me!

Thanks for the support everyone!


Friday, May 9, 2014

Shout Out to My Coworkers

For people that don't know I am working in a grant funded position at a crime lab that does not have benefits and only gives me 5 sick and 5 vacation days a year that have to be accrued.  When I decided to donate most of my time was already used on other things.  I have the option to work Comp time which I started to do as much as I could (without getting burnt out) to get as much paid time off for the surgery as I could with a goal of 3 full weeks off.  This week I realized I was 2 days and 5 hours short with plans to find time to work 5 extra hours to make it only 2 days.  I only was able to do 2 extra hours this week, but thankfully my coworkers pulled together their comp time which my Boss let them donate to me.  This means I do not have to worry about missing pay while out, which is one less thing to worry about.  Hopefully, now I will only need the 3 weeks I have planned to heal.  I am grateful to work in a great environment with a awesome boss and such thoughtful coworkers.  Their support in my decision to donate means a lot especially since I know they are going to have to pick up some of my daily tasks while I'm out.

Also, I am going for my preop appointment today so hopefully everything goes well.  We are now less then one week away from surgery.  So I will update later with that.

Tuesday, May 6, 2014

Getting Things Together

I am feeling good about the surgery at the moment.  I only need 5.5 hours of comp time (which I can get) to take off just shy of 3 weeks of work.  Meaning if I stay out for 3 weeks I'll only miss 2 days of pay, which is exciting, and some people may still donate some of their comp time to me so I may be fully covered!  I also set up the spending log already so it will be easier for my coworker to do while I'm out, and I will try and put in payroll as far out as I can with the information I know on Thursday so that is take care of as well.  Its nice to have time to prepare things before the surgery.

Then at home Dave and I are doing ALL the laundry this week/weekend, and cleaning up our room and stuff so we don't have to worry about it much after the surgery.  I think we should probably go grocery shopping sometime next week so we have food around the house after the surgery and don't have to go get anything.

Its getting more real with every passing day, I keep waiting for something to delay it again (although I DO NOT want that to happen), but hopefully everything stays on track.  Some days I am anxious about the whole thing and others calm, but overall no matter what I'm feeling I cannot wait for the relief and freedom Dave and I will feel after the surgery is over, when the kidney is working, and when everyone is healed!  The idea of not living our lives around a dialysis schedule, the thought of Dave being healthy and happy, is enough to keep me excited and ready for the surgery.  

Friday, May 2, 2014

SocialMediaStoleMyKidney





There is a documentary being made called Social Media Stole My Kidney, about one womens decision to donate a kidney after reading a tweet.  She then travels the US to meet other kidney donors and talk about kidney donation.  I think people should check it out, so click here, to learn more.