Showing posts with label undie run. Show all posts
Showing posts with label undie run. Show all posts

Tuesday, February 2, 2016

Undie Run!

So not super kidney related (except that people will be able to gawk at my awesome kidney tattoo) but Fiance/recipient and I will both be running in the Cupid's Undie Run on February 13th.  This is a mile fun run through the Baltimore, MD inner harbor!  Oh and the catch we will be in our underwear!  We are doing the crazy cold event to help raise money for the Children's tumor foundation and to help find a cure fore neurofirbomatosis(NF).  NF is a rare genetic distorter that causes tumors to grow on the nervous system at an uncontrollable rate.  It can cause deafness, blindness, paralysis,  physical deformities, learning disabilities and chronic pain!. There is no cure for NF!  Which is why we are trying out hardest to raise as much money as we can to help the children's tumor foundation continue studying this disorder.

I donated my kidney because of a different horrible genetic disorder, and now I am running in my underwear to help people with a different genetic disorder!  Because of this I am asking that if you read this blog and are able please consider donating to this amazing cause using my link or my recipients links below!

https://my.cupids.org/AmberWoo

https://my.cupids.org/DavidWilson
P.S. Last year we were batman villain themed with Dave being batman.  This year we are doing Pokemon themed!  So if you are interested in some underwear wearing pokemon donate then you will probably see pics posted here!

Tuesday, December 2, 2014

#givingtuesday

It is Giving Tuesday and that means I want to talk to you about the Cupids Undie run.  I know this is not Kidney related and I should really post an update about that soon (blood work in the next week or so to make sure everything is still good, as soon as I have that information I will share.).

The Cupid's Undie run is a run to help end Neurofibromatosis, a disorder that causes tumors to grow in and disrupts cell growth in ones nervous system.  It can be very painful.  The run is done in February in the freezing cold (at least in our location, it was snowing last year), and in ones underwear.  The reason for this is to show that we are willing to do anything to help find a cure including run in freezing temperatures, through a city, in our underwear.

I am raising donations for the Children's Tumor foundation to help find a cure for this painful disorder.  http://my.cupids.org/AmberWoo These donations go to help people like Meg Rowe Baltimores NF Hero!  She has Neurofibromatosis and it has turned into a form of cancer she is fighting.  She did the run last year and I can not wait to run with her this year as well as raise as much money for her and others who are battling with her.  For more on meg check out her page http://www.caringbridge.org/visit/megrowe.

So if you are looking for a place to give some extra money to this holiday season, check out my page and help find a cure for NF.  Feel free to also give to organizations who deal with transplants too, if not The Children's Tumor Foundation