Showing posts with label childrens tumor foundation. Show all posts
Showing posts with label childrens tumor foundation. Show all posts

Tuesday, February 2, 2016

Undie Run!

So not super kidney related (except that people will be able to gawk at my awesome kidney tattoo) but Fiance/recipient and I will both be running in the Cupid's Undie Run on February 13th.  This is a mile fun run through the Baltimore, MD inner harbor!  Oh and the catch we will be in our underwear!  We are doing the crazy cold event to help raise money for the Children's tumor foundation and to help find a cure fore neurofirbomatosis(NF).  NF is a rare genetic distorter that causes tumors to grow on the nervous system at an uncontrollable rate.  It can cause deafness, blindness, paralysis,  physical deformities, learning disabilities and chronic pain!. There is no cure for NF!  Which is why we are trying out hardest to raise as much money as we can to help the children's tumor foundation continue studying this disorder.

I donated my kidney because of a different horrible genetic disorder, and now I am running in my underwear to help people with a different genetic disorder!  Because of this I am asking that if you read this blog and are able please consider donating to this amazing cause using my link or my recipients links below!

https://my.cupids.org/AmberWoo

https://my.cupids.org/DavidWilson
P.S. Last year we were batman villain themed with Dave being batman.  This year we are doing Pokemon themed!  So if you are interested in some underwear wearing pokemon donate then you will probably see pics posted here!

Wednesday, October 8, 2014

Nothing that new.

Its been awhile now since my last blog post and since the surgery.  Dave and I are both doing well.  Our schedule has been a little over packed lately, possibly because we are making up for all the things we couldn't do a year ago, due to him being on Dialysis.

 I still get dehydrated faster and keep trying to drink lots of water, but I do forget sometimes.  I also on occasion get a slight pain where my kidney used to be.  I am assuming this is still from scar tissue around my muscles and over use of that area at times.  There is also still hardly any sign I had a surgery, people are amazed at the incision site being my belly button and looking so nicely healed.  I haven't forgotten about before and after pics, I have just been busy as mentioned above.  I am going to try and challenge myself to do it by the end of this week, so if you are interested keep an eye out.

Onto other fun things, Dave and I brought home a puppy, something we definitely did not have time for when he was on dialysis.  She is a Brittany and we have named her Echo.  She has a lot of energy and is keeping us both active which is great for the both of us.

Lastly, last year I ran In the Cupid's Undie Run and am planning on doing so again this year.  The run takes place on Valentine's Day and is a mile run around Baltimore City in my Underwear.  The run raises money for The Children's Tumor Foundation to help end neurofirbomatosis(NF).  NF is a genetic disorder that causes tumors to grow on various nerves.  This disorder can cause lots of difficulties for people who have it.  Knowing how bad tumors (B-9 or not) can effect the human body and having personally been effected by someone who has had a different type of genetic tumor causing disorder I feel like this is a great cause to support.  This is why I am passionate about raising money this year to help find a cure for NF.  By running this race I committed to help raise money for the cause.  If you are interested in helping me do that you can donate to my page http://my.cupids.org/AmberWoo .  All donations go to The Children's Tumor Foundation.  

My Team from Last years Run.

Thursday, February 6, 2014

mini, mini update.

Tuesday I had to go to my personal Dr. for one last thing (that should turn out fine which is why no one is worried about it halting the process) and my blood pressure was normal!  This is really exciting for me since I knew all along my blood pressure was normal but it kept being high for things! First step to beating my bad white coat syndrome!

Also looks like March 6th or March 7th depending of if they decide to remove Dave's kidneys or not (he has a CT scan on the 10th for them to evaluate the need to remove them or not).  Soon but soon is exciting.

Also decided to just relax and not think about the money I have all my tax stuff so hopefully if I get them done soon I'll get some money back to help with it all (I know I've payed plenty of Student Loan Interest to be eligible).


Unrelated I am running (in my underwear) for the Cupids Undie run on Febuary 15th to help end neurofibromatosis and raise money for the Children's Tumor Foundation.  If you would like to support me; I am going to link my page below, all money donated goes straight to the Children's Tumor Foundation!
To donate: http://hopecur.com/amberwoo
Thanks